Today has been a good day. Kya rested pretty well last night and woke up in a good mood. Although, when she figured out it was just her and I she said "No Doctors!". She already had it figured out! But, we got around and went to Oklahoma City for her treatment. When we got there she said she would stay in the car! But I told her we were going to go see Mavia and that we would get it done with no ouchies! She saw Mavia coming down the hall and she gave her a hug and kiss. Then we went back and she said this is my room. Mavia was able to access the port very easily and it worked so smoothly! Kya even called her daddy to tell him "No Ouchies"! We only had to spend and hour and a half in the infusion room compared to 3 to 5 hours we have in the past. What a blessing!
We didn't get to see the doctor, but Mavia gave us our lab results. All of her enzymes but one were back into the acceptable normal range. The Aldolase, which is what really measures the disease, is still above the normal range. But, it has dropped a whole lot and is just barely above the acceptable high of the normal range. None of this may makes sense to anyone (it is pretty confusing for me), but all of the enzymes have to be in the normal range for any possiblity of remission. With only one out of the normal that is super! They were all at least double, some more than triple, the normal high when we started. This also means that she is responding to all the treatments. We also got back her Celiac test and it was negative. Which means that the medicine will absorb correctly and she can still eat wheat and flour products.
So THANK YOU TO EVERYONE WHO HAS BEEN PRAYING! Please continue to pray because our journey is not nearly over, but today has been an uplifting day. I just know that God has big plans in the life of this little girl! Thank you again for the prayers and support they have been greatly aprreciated! Please pray for Lake to get well so our family can all be back together soon!
Our prayer is for God to lead Kya's health team in the direction he wants. Please let her be a miracle and blessing to them.
Greatly Blessed!
Lake, Kalee, Kaysa and Kya
Great news Kya-- and you didn't even have any "ouchies"!! I know that God is answering everyone's prayers that all your tests will be normal and you will be back to doing everything that you want to in no time at all! We hope that Daddy is feeling better too! Hugs and prayers, Juana
ReplyDeleteHI KYA-
ReplyDeleteSO GLAD YOUR TEST RESULTS WERE BETTER & YOUR INFUSION WENT WELL, TOO! NO OUCHIES THAT'S AWESOME!!!
WE KNOW GOD IS WALKING HAND IN HAND WITH YOU AND HAS SOMETHING VERY SPECIAL IN STORE FOR YOU.
WE LOVED YOUR LITTLE RED RIDING HOOD PIC-STAY AWAY FROM THE BIG BAD WOLF.
LOVE & PRAYERS, NICK & CAROL