Kya is going to be in a Pageant?!

Here are the facts. Kya loves to be a princess. She loves to dress up and get all dolled up. She wants to have a princess crown like Kaysa. She wants a picture of her in a crown on the wall like Kaysa. She has no rash, she can walk, and she can dance! So she is going to be in her first pageant ever! We have to have the paper work in by tomorrow with a headshot. So we took her pictures Tuesday and here is a proof of our favorite. She is so funny. I wish she could do a stand up comedy routine. But, we are just going to hope that she does her dance when she is on stage all alone! Are we expecting to win? LOL Not really. We are just praying that she doesn't attack anyone during the group play interview session and that she doesn't lay down on stage because she is tired! This should be an interesting day. So if you would like some good entertainment Woodward Arts Theatre on June 19th at 7:00 p.m. will be the place for that!

By the way Kaysa is going to be in the older age group and that could be a whole other rodeo! I may need your prayers for sanity and patience!!!

Kya is ready for summer!

Kya is doing good. She seems to be holding her strength. We continue to try and avoid the lovely Oklahoma sun! School will be out for Kaysa in 2 days and Kya is ready for her to be home to play with. Dance recital is this weekend and then dance and pom will be over until next school year. Next Thursday Kya has her occupational therapy evaluation and Kaysa gets a tooth pulled. What a way to start the Summer off!

Kya had a speech therapy evaluation yesterday. She had fun "playing" with Deedra! I think she did good, but we don't have the results back yet.

Please continue to pray for healing and for her to keep safe from the Summer sun. Thank you for your prayers and support.

Kalee

Normal Labs!?

I talked to Chicago and all of Kya's labs are in the normal range. Her aldolase is 6.7 which is good and normal, but it is up 1.5 from April 2. I don't know why and neither do they, but they said it doesn't matter normal is normal. They are not the ones with a sick kid!!! That is a big jump in 3 weeks as far as I am concerned. So this is my concern. I know as they start to flare levels climb. I know this and they know this so why am I the only one concerned? I guess because I am the mommy!!! They said we would continue to taper and watch her levels. I guess that means we will see in June when we have an appointment at Childrens in OKC. (If I don't have them checked before then!)

We are in the process of getting ready for occupational therapy. Kya is still a little weak in the torso and has a sensory issue. The two combined don't work well. So they are going to see if they can help with the sensory issue to avoid problems from the weak muscles!

Besides those things, Kya is doing good! She has been going strong and is signed up to start Kiwanis T-ball in June!? Should be interesting. She has a dance recital May 22nd and is very excited about it! We got her dance pics in yesterday and they are adorable! I will try to post them when I get a chance.

Please continue to pray for healing in her body. Also, please pray for some nice not so sunny Oklahoma days this summer! We are already trying to avoid the sun. Thank you so much for the prayers and concern!

Kalee