So it has been a long while since I have posted anything! Kya has been doing great!!! I love to type that sentence. She has had an ear infection, sinus infection, and stomach bug since my last post. I know that doesn't sound very great to you, but her levels have remained normal through them all!!!! What a huge blessing and the best thing we could have happen.
She looks fabulous and is going 100 miles an hour. Christmas is always bittersweet at our house since Christmas Eve was the first trip to the Dermatologist with the horrible JM rash 2 years ago, but this one was a very good one. It has been the first Christmas since that day 2 years ago on no meds!!! (Can you tell I am excited?!)
God has truly blessed Kya and our family in so many great ways! I know that it is easy to get depressed and so wrapped up in the negative (especially when in the middle of treatments and your shild is sick), but when you step back and look at the big picture it is amazing. Our family and extended family has developed one of the closest bonds imaginable. My children are truly learning what is really important in life and valuing the little things. And most of all we have met some of the most amazing people through this journey and made life long friends!!!
So as I get ready for another new year, I am thankful for the good and the bad in my life. As I told Lake the other day (When he thought we were having a really really bad day), it takes the bad days to make us realize what a good day really is. A day of healthy kids. A day spent with the whole family all together. A day of fun inside out of the harm of UV rays. A day where we can just enjoy each other. A day where there aren't a whole lot of detours from your normal plans. The little things in a day that before this we took for granted! Even the rough days of traveling to infusions, doctors or hospitals be thankful that you can spend those days with your child and get to know them better. That he has given you a child and that he has special plans for them. That you are getting to spend that extra time with them to learn there favorite characters, movies, colors, snacks, and all the little things we don't always pay attention to!!! God truly is amazing each and every day!!!
Thank you to all the people that have helped us on this great journey! It is not over yet, but I look forward to the rest of it with high hopes! You have truly blessed our family and I hope we can help others! We will travel to Chicago in February and hopefully we will get to set a date to remove her port. However, we will take each day in stride and know that God is in charge!!!