Waiting On Snow!!!

Kya started her Cellcept yesterday. She is doing pretty good. Her rash is flaring up again, but that is to be expected with her Aldolase back up. Her muscle strength is holding pretty steady. I think that she may feel sore and achy again. She asks to take a bath often. I think the warm water feels good on her muscles. Besides that she is going pretty strong.

We are all at home together today due to the winter storm that is coming. I plan on taking it pretty easy and just having a relaxing day. Dr. Pachman is suppose to be calling us back today. I am ready to talk to her and get our treatment plan outline from her. I know that her and Dr. O'Neill have already spoken and they are working together very well.

Please pray for us as we travel to Oklahoma City on Sunday. Lake has an early morning dental appointment in Edmond and Kya has a treatment at Children's at 9:00. They both need your prayers and I may need more dealing with both of them in one day! We appreciate your prayers and support! God has blessed us and we know it. We were not suppose to take the treatment that Friday, we were going to wait until Tuesday. I just did not feel comfortable with that length of time so they did it on Friday instead. By that point her level was already elevated to 10.9, just imagine what it would have been on Tuesday. God has definitely taken care of us and put us in the right places at the right times. Dr. O'Neill was able to call Dr. P since we had already been to Chicago and together they figured out what to do next. Isn't God Great!

Thank you again for your prayers and continued support! Please remember that The Cure JM fundraiser will be next Friday, April 3rd at 7:30 p.m. Come if you can and support a great organization. For those of you who can't and have already sent donations Thank You Very Much!!! Once again thank you for prayers, support, donations, and everything else!

Kalee