Kya has had a good day. Her rash looks pretty good today. Her movement is a little stiffer and her knees keep giving out on her, but she is in a pretty good mood. We slept in this morning and haven't done very much today. We figured out where the hospital is, how to get there, and where to park. We are ready for in the morning.
We ordered in supper to the hotel tonight. Kya said we were having a tea party. That is one thing about Chicago, they will deliver any kind of food to you! We just finished supper and are playing with Barbie dolls and princesses. Hopefully we can get to bed at a decent time tonight!
We have discovered that there is one windier place than Oklahoma and that is Chicago! The wind was so strong that Kya couldn't stand up against it at one point today. Right now it is blowing so hard that it is blowing the curtains in our hotel room with the window closed.
We found out that we have the swallow test at 8:30 a.m. After the swallow test they will see if she is aspirating at all. If she is not they will probably schedule the MRI for tomorrow. But, they will have to sedate her for the MRI and they won't do that if she is having any throat or aspiration problems. Then starting at 1:30 we have clinics. In clinics they will do PT/OT, blood draws, nurse evaluations, muscle strength evaluations, a hematology team will evaluate her, and last she will see Dr. Pachman. They said to plan on a very long day!
Please pray for cooperation from Kya tomorrow and for God's guidance in everyone who will be working with her. Thank you so much for the many prayers! We appreciate all of your support and encouragement. Your prayers mean so much to us!
Kalee
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