Kya has had a pretty good weekend. Having the IV infusion on Friday changed our schedule quite a bit. We usually are on the downhill side of an infusion when we take our Methotrexate, however this weekend we had them on back to back days. I think that they kind of offset each other and maybe it worked a little better. Kya had a hair cut Saturday morning and was definitely feeling very good from her infusion. Then, about 1:30 p.m. I gave her the Methotrexate. She had a good afternoon and evening just kind of snappy. She slept good that night and took a 4 hour nap Sunday afternoon and still went to bed by 11:00 p.m. This was very exciting and unexpected. She has had good strength and her rash looks pretty good.
Today, Kya stayed with Grandma Denny and went to dance. She was kind of territorial at dance, but overall she did good. Hopefully, she will continue to sleep and not have the normal 3 or 4 nights of insomnia from her medicines.
Thank you for all of your prayers. We feel so blessed by each of you. There are so many people who have done special things to help us out or have given to Cure JM and we appreciate each and everyone of you! To our nation wide prayer warriors please keep praying! It is with your intense prayers that Kya is doing as well as she is.
Also, I just realized this weekend how many people are actually keeping up with this blog. I have a disclaimer and an apology. I really do know proper English and Mrs. Sarena Kauk you really didn't fail with me. I am just glad to at least get a blog posted every other day, much less make sure that it is typed correctly! I am sorry if I have typos or don't make sense or jump from subject to subject, but that is just how my mind is working right now.
Thank you again for your patience and prayers! Your physical, emotional, spiritual, and monetary support are greatly appreciated! Please keep up the prayers!
Thanks!
Kalee
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