We just got the phone call that Kya's Aldolase is back up. It is not as high as it first was, but it is greatly elevated. This is not a good sign. They added 2 more medicines to her daily routine. She will now also take Cellcept and Folic Acid. They also said to go ahead and start the Methotrexate injections. We also have to move her IV Infusions closer together again. I am really starting to hate this disease!!! Just when you think things are getting better and normalizing you make a sharp right turn and it throws you totally off course.
I am very thankful that we have the team of doctors that we do. Our Dr. in OKC called Dr. P in Chicago as soon as she got the bad lab results from Friday's tests. They worked together to figure out what to do. This is such a blessing!
Please continue to pray for us and for Kya! Thank you for all of the many prayers. We will continue to be thankful for the small blessings and realize that God is in ultimate control and He knows what we can handle.
Thanks,
Kalee
Hi Kya, I am sorry you are going to have to be taking more medicine but we know you are a real little trooper, be a good girl for Mom and Dad...we love you and will say a prayer for you and your doctors tonight, Johnnie
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