Sorry I haven't blogged but it has been a crazy week. We have been in Oklahoma City every day, but one. Kya has had a good Thursday and Friday. She has played very hard with Kaden and Grandma Trish. They have played at the river, outside, and at the Elk City Park. I think she may have played a little to hard, because she is very tired and cranky today. (And the Methotrexate hasn't even kicked in yet!) Her movement is not quite as easy today and her rash is pretty bright pink. I am not sure if this is from playing so hard or from lowering the steroid dose. I am really glad that we are going to see Dr. Pachman this week. This visit will really help ease our minds and confirm that we are doing everything possible for the best treatment for Kya!
We did find out yesterday that all of her enzymes and her aldolase are all in the normal range. However, the Aldolase is higher than it was last week. Please pray that it will continue to stay in the normal range even with the lowering of the oral steroids. This is a very important measure in the disease activity level.
Thank you for your prayers and support. Please continue to pray for a safe trip to Chicago and that God's will is done in her treatment. We are so blessed to have everyone that we do supporting us and praying for Kya's healing! Thank you again!
Kalee
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