Doing Good!

Kya had an appointment at Oklahoma City with Dr. O'Neill. She said she was doing very good. Kya was not real cooperative in doing the muscle testing, but every two year old has their day! She would do a trick for about 45 seconds and then say "I'm all done!". It is very frustrating trying to get a two year old to do something they don't want to do! However, Dr. O'Neill says that is just a two year old and don't worry about it. She was amazed at how busy and strong Kya was. She said she was getting tired just watching her and I totally understand that feeling.

We will go back to Chicago in December. Until then, we just wait. I hope we are waiting for nothing, but we are watching for everything. Any signs of rash, muscle loss, fatigue, illness. I don't like this game! We don't see a doctor or have any blood work again until December. Exciting and scary at the same time!

Strength wise Kya is doing good. Still a little weak in the abdomen, but getting stronger. However, her immune system is still very suppressed!!! She told us to be very careful getting her out and about. So, we are thinking about becoming hermits. Not really, but we are trying to be very careful. We are trying to avoid sick people, large crowds, enclosed areas with lots of people, and public places in general with Kya. No daycare, no nursery, nothing with other contact with kids. It is not much fun for her, but at least she has Bubbles!!! I am ready for this flu season to be gone and over!

Thank you so much for your many prayers! Kya is truly a miracle and w know that God is curing her as we speak! Please continue to pray for our family and that we can all stay healthy and strong. Thank you again for everything!

Kalee