Another Infection

Well, we took Kya back to see Dr. Featherston yesterday. Her sinus infection has came back. She was on a 10 day round of antibiotics and she had been off them 5 days. They did a CBC and her white cells aren't even elevated. Which I thought was a good thing that means the disease is under control and it is not going rampid in her body. However, when you have an infection and they aren't even elevating enough to fight it off it is not a good thing. So here is the scoop. She will be on Zithromax for 7 days with no cellcept or Methotrexate for one more week. Then she will be off antibiotics for 5 days but back on the cellcept and Methotrexate. Then she will have another 7 days of Zithromax and be on the cellcept and Methotrexate. The whole time we are still tapering her steroids! Are you confused yet? I am getting there. I go into all of this just to explain how tedious this whole disease and medicine situation is.

Many people have asked how Kya is doing and I say good. Which she is doing much better and she has made huge steps in the right direction and we even feel like we are on the downhill climb. However, you have to keep in mind that one little runny nose for someone else can become a huge sinus infection for her and really change the course and direction of her disease. She is still on her daily meds, totalling 9 a day. We go to Childrens on Friday to have a blood draw and see where her levels are at since we have stopped the infusions and lowered her steroids.

Her cheeks are a little rashy looking, but nothing else is showing signs. She is still pretty strong and her knees, elbows, and hands look clear. Please pray for Kya that this infection doesn't send her into another flare. We know that satan always attacks when things are going good and Lake has had a good week in revival. So we know that satan is just trying to get us down, but we know that with everyone praying for her that we will have victory over him!

Thank you again for all of your prayers and support!

Kalee