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Wednesday, July 21, 2010

Quick July Update

Kya has been doing great! She has been running, jumping, swimming (during non-sunny times), and just playing really hard. Her skin looks fabulous and she is going full speed. She sang a duet with her sister this last weekend and did a good job. You could actually understand her words. Monday we had a blood draw. Yuck! But she was a very big girl. No tears during the needle insertion or the draw. She even helped out! Did I forget to say that she screamed for 3 minutes leading up to the whole procedure. But then nothing not a single tear once they took the patch off and started cleaning it. It is purely psychological.
Happenings since my last post: Kya has learned to swim. I mean really swim with no floaties. Jumping off the side and doing flips off the ladder even. She scares me to death but wonderful therapy! We are scheduled to stop Cellcept August 1st. Which means we will be taking no immune system supressing medicines. We will have frequent blood draws to monitor levels. Kya is scheduled to start a private preschool in August and Kaysa will be in 2nd grade! My babies will both be in school. Kaysa got her roundoff back handspring at gymnastics! We are so proud. She is doing awesome. Kaysa and Lake are in the musical Bye Bye Birdie. They practice every night Monday through Friday for about 4 hours. It runs August 2-8 at the Red Carpet Community Theatre in Elk City. Dance will start back in August and Kya can't wait! Kaysa is wondering where her summer has gone! Besides that nothing much has been going on!
Thank you so much for the prayers and support. Please continue to pray for healing in Kya's body and for her to get her complete strength back. She is doing so much better, but there are still some issues that we are working through. This disease is very hard on the whole body and the drugs to fight it are even harder. There are side effects from both that we may have to deal with for a while. Again please continue to pray!
Thanks!
Kalee

1 comment:

  1. Always in my prayers Kalee! I am so tickled that Kya is doing so well and it warms my heart that she is running, swimming, playing without having to worry much about the disease....I am so glad it is in remission and whoooo hoooo that she will be off of Cellcept....I took that also for awhile I am glad she is coming off of it....that is awesome she will be on no immune suppressants at all! Ya'll are doing awesome with her!! Girl you are so right the drugs to fight this is even harder on our bodies....

    Yay for Kaysa doing her first back handspring, I remember when I did my first on back in the day I thought I was just little miss thing LOL....

    I go back to JHU next week since I am having so many complications....please keep me in your prayers as well

    Oh and I have told all my bloggy friends and IRL friends about Pepsi Cure and they have all blogged, voted, Facebooked, tweeted ya name it we've done it....

    xoxo
    Summer

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