Stopping Meds

We got the news today that all of Kya's labs are perfectly normal. A couple were a little low, but considered normal for her case and not a worry. So we get to stop all meds after Saturday!!! My birthday is Saturday and I couldn't ask for a sweeter gift. I am so excited I can hardly stand it! However, there is that pit of the stomach feeling of I hope everything stays normal and OK. But I know that God is in complete and total control of this situation and is in charge of it all!

Thank you so much for your prayers and faith. Kya has come so far so fast! We love you all and ask that you continue to pray for permanent healing and remission!

Thanks,

Kalee

Quick July Update

Kya has been doing great! She has been running, jumping, swimming (during non-sunny times), and just playing really hard. Her skin looks fabulous and she is going full speed. She sang a duet with her sister this last weekend and did a good job. You could actually understand her words. Monday we had a blood draw. Yuck! But she was a very big girl. No tears during the needle insertion or the draw. She even helped out! Did I forget to say that she screamed for 3 minutes leading up to the whole procedure. But then nothing not a single tear once they took the patch off and started cleaning it. It is purely psychological.

Happenings since my last post: Kya has learned to swim. I mean really swim with no floaties. Jumping off the side and doing flips off the ladder even. She scares me to death but wonderful therapy! We are scheduled to stop Cellcept August 1st. Which means we will be taking no immune system supressing medicines. We will have frequent blood draws to monitor levels. Kya is scheduled to start a private preschool in August and Kaysa will be in 2nd grade! My babies will both be in school. Kaysa got her roundoff back handspring at gymnastics! We are so proud. She is doing awesome. Kaysa and Lake are in the musical Bye Bye Birdie. They practice every night Monday through Friday for about 4 hours. It runs August 2-8 at the Red Carpet Community Theatre in Elk City. Dance will start back in August and Kya can't wait! Kaysa is wondering where her summer has gone! Besides that nothing much has been going on!

Thank you so much for the prayers and support. Please continue to pray for healing in Kya's body and for her to get her complete strength back. She is doing so much better, but there are still some issues that we are working through. This disease is very hard on the whole body and the drugs to fight it are even harder. There are side effects from both that we may have to deal with for a while. Again please continue to pray!

Thanks!

Kalee

Day number 545, but who is counting?!

Yesterday was day number 545 that Kya had to take medicine 3 times a day. But today there will be no night meds!!! She will take meds only twice a day first thing in the morning and after food. We are so excited! It has definitely been an emotional roller coaster and a long journey, but Kya is fighting a good fight. She is such an amazing 3 year old!

Last night we had our annual 4th of July get together with about 200 friends and family. The kids were doing fireworks, running around playing chase, and having a great time. Kya was in the middle of them all with her long sleeves, pants, and hat on. Besides that, she was just like them and never missed a beat! After the kids blew up everything they wanted to we sat back and watched the big fireworks show! As we sat with all of our family and friends watching fireworks I got a little teary eyed thinking about Kya. I just held her a little tighter and thought about the things she has battled over the last year and a half. She has become such a strong little fighter with such a carefree independence. She has knowledge beyond her years and accepts life as it is! Long sleeves, pants, and hat year round don't bother her. We were looking for her and she had led a group of kids to play with her under the fruit trees in the shade! She chose a table on the shady side of the barn to eat supper at and didn't sit with her firends in the sun. All of those decisions at 3 just amazes me!

Thank you so much for the many prayers! We know that God has brought her through this with such strength and courage. It is awesome to have such supporting friends and family! We love you all and greatly appreciate everything! Thanks again!

Kalee