Chicago and Back

We have been to Chicago and back! Kya is doing very well. The doctor was impressed with how she was doing. Her blood vessels looked good. Her muscle test was up 3 points since December! Her CMAS was a 42 out of 52. We are very excited! She has a few areas of muscle concern, but we are going to work on that. Now we are just waiting on the labs to come back. We will continue to taper her meds at the current rate and hopefully she can start preschool in the fall!!!

Thank you so much for your continuous prayers! It is nothing short of a miracle how well Kya is doing so quickly. I ask that you continue to pray for her and a complete healing in her body.

We also ask that if it is at all possible please make a donation to CureJM. They have helped us so much and they fund the doctor and research for Kya's disease. With all of the outside cries for donations from Haiti and everywhere else, CureJM is short on funding! Please help them continue their funding and support to help find a cure for this disease!

Thanks,

Kalee