We are back from CureJM in Austin and ready for another year! We were very inspired by all of the families who attended Austin. The doctors were amazing to listen to and there are many studies going on to try and figure out more about this disease. The main problem is funding for research. There is no federal funding so everything they know about this disease has come from donations from people like you and me. Our goal is to help raise funds for this research! If we want there to be a cure for Kya it has to come from us and our great support system of friends.
Kya is doing well, considering. Right now she has an eye infection and we are having to stop cellcept until we can get rid of it. However, her disease seems to be under control with the meds right now.
Please continue to pray for Kya and her healing! (especially while we are dealing with this infection) Each day is a challenge for her and our family. The unknown and uncertainty of how she will do on this taper (and without any meds right now) is very hard on everyone! Your endless prayer and support is very much appreciated!
Also, if it is in your heart to donate to CureJM or help us organize a fundraiser we would love to have your support! Please remember that all CureJM donations are tax deductible because it is a non-profit organization with all funds going straight to research!
Thank you again for everything!
Kalee
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