Some Labs are Back!

We got some of Kya's lab results back. Her aldolase was 5.7 which is in the normal range. It is higher than it was the week of Thanksgiving, but we will take anything normal. The UA we had to rerun in OKC came back perfect. All the other labs they had back were normal also. So where does that leave us? It leaves us stopping the plaquenil and watching her for a couple of weeks. If she looks like she is doing good we are suppose to taper the cellcept by .1 ml each month until we go back. We go back March 15th! Also, we have to increase her folic acid intake by 1 mg each day.

I am excited and very nervous about all the changes. I pray that she continues to stay strong and that she improves daily as we taper. I am sure that she is ready to be off of all the medicine also. Last week she did learn to swallow a pill! Her folic acid is now in pill form due to them not manufacturing the injectible kind right now. But she is a very big girl and takes it like a trooper!

Thank you so very much for all of the prayers and support! You have been an inspiration to us and we ask that you continue to support Kya and CureJM. They are making great strides in the research of this disease due to the funding from CureJM. We will be going to Austin in February for the convention and to meet with the doctors. If you would like to donate we are trying to raise at least $1,000 dollars before this time for CureJM. You can donate through the CureJM website, through Kya's firstgiving page and leave her a note, or you can send us a check made payable to CureJM and we will get it to them! Again, I want to thank you for your support!

Please continue to pray for Kya's healing. She has a journey still ahead of her. Also, there are some tests that we do not have back yet that we are waiting on for her. Thank you and God bless you in the coming year!

Kalee