Kya is doing great!

Kya is doing great! She has been running and playing like a normal 3 year old. She is growing up so fast and starting to act like her big sister. She loves to sing and dance. Yesterday she told her Grandma Denny that she need a friend to come over to play dress up with! I know that she gets lonely by herself, but really a friend over at 3?! I can't see any changes in her disease activity. I think she is getting stronger and that her abdomen is starting to even get a little stronger. She is definitely getting taller and thinner. Her steroid and toddler chubbiness is starting to slide off. She is starting to look like a little girl and not such a baby. But, she will always have those round little cheeks!

Some of you may ask if she is doing so great why isn't she out and about? Simple answer. GERMS!!! (and lots of them) She is still on 2 very strong immunosuppressants. She can't afford to be around anybody right now. We are being very careful to use extreme hygeine and hand washing. It is not worth getting her out and risking a set back at this point. Our family brings in enough and we don't need anymore!

Kaysa has the crud again! So her and Lake have been at the river place since Tuesday. It isn't strep and it isn't swine flu it is just the bad crud. I think her fever finally broke last night. But, she still sounds terrible! This is exactly when all of the stuff started last year and just snowballed so Lake and I are watching Kya very closely and trying to keep her well.

On November 3rd last year we took Kaysa in with the crud. The week before Thanksgiving she got Strep throat. The week after Thanksgiving Kya got strep throat. Then her rash began and they just thought it was part of the strep. It all just snowballed from there and that is how we got to January 9th with the official diagnosis of JDM. So of course it is kind of like the cycle trying to start all over again! But, we are going to fight it every step of the way and know that God has his protective hand over her!

Thank you to everyone for all of the continued prayers! She continues to need them daily. It feels so strange not going to a doctor everyweek or even every month with Kya. We are just sitting back and holding our breath until December when we go back to Chicago! I know that they will find good results and start tapering more medicine. God is healing her and Kaysa says she will be cured! What faith!!! Again, thank you very much for everything.

Kalee