Going Strong

Kya is having a very good week. She has finally caught up on her rest from last weekend and is going strong. She has been helping Grandma Trish this week get the river place ready for the kids from Boys Ranchtown to come out and play for the weekend. Also, she has been picking lettuce and spinach from her garden. She checked her other plants and she has some small tomatos starting and an inch and a half long zuccini on one of her plants. She even has some marigolds blooming. I think our okra has gotten to much water. (It looks pretty sad!) Kya loves her garden and it gives her something to do outside in the evenings. A fun way for some physical therapy!

As far as her rash goes it is pretty much a thing of the past. Her eyes will heliotrope a little when she needs some rest or gets to tired. Her muscle weekness is constantly improving. She may be a little weeker this week because she had such a big weekend. She will have an infusion while we are in Chicago and that will help! We are getting ready to make the journey to see Dr. P again. Kya keeps asking her sissy if she wants to go to her Chicago house. I think Kya is excited that it won't just be her, mom, and dad on the road for 14 hours this time. She thinks Kaysa and Grandma Trish will add some entertainment to the trip! (and they probably will)

Kaysa is most excited about the World's Largest Candy Store on the way. (Imagine that!) She is also excited about going to the Aquarium at Jenks on the way. She doesn't know much about Chicago so she is not sure what to think is going to happen there. All she knows is that she will be 7 when she gets back to Oklahoma!

Thank you for your many prayers! Please continue to pray for our family and the many others with children who are going through the same thing. I know that it looks like she is just fine now and that everything is all better, but she is still a long ways from well! Sometimes we even forget that but we are reminded of that as I am drawing up her meds everyday. She is still taking a methotrexate shot once a week that makes her feel very bad for about 2 to 3 days. Every other week she spends at least 3 hours at a hospital getting an IV infusion and at least once a month she sees a doctor whether she likes it or not! Even with this things are much better than they were.

Thank you again for your continued support and prayers!

Kalee