Kya has had a good day today. Right now, she is taking a nap. She went to the bank and helped me work today while Kaysa was at play practice. Then on the way home they both fell asleep. Her JM is pretty good today. Not to much muscle weakness and her rash isn't just flaming. However, we have a very runny nose and red eyes. I hope that it is just allergies with Oklahoma's great 60 mph wind the last 3 days!!! We go to see Dr. O'Neill Monday and we have a treatment so if we are coming down with something maybe we can get it caught early.
We had the fundraiser for Cure JM on Kya's behalf and raised $3,098! Thank you to everyone who donated their time, money, and items for the auction. Every fundraiser is one step closer to a cure for Kya! Kya even was able to attend and she actually got on stage and told everyone "Thank You Very Much!" (that is a huge milestone for her) Thank you to everyone who put work into getting the fundraiser together. The play was great! I know it was hardwork, but we greatly appreciate it!
Please pray for a good day Monday, that it is just her allergies, and that she is over whatever it is quickly. Thank you for all of the continued prayers. We know that we are facing a long battle of tapering meds and doing a balancing act so please keep us in your prayers as it is very hard to handle the down times. Please help us keep Kya strong and healthy with your prayers! Thank you again!
Kalee
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