Kya is doing good. Her levels all were normal. The doctor said she looks great. Her strength and core muscles are getting stronger. She loves occupational therapy and is even getting better with the blood draws! We will go monthly for labs since they are tapering her and she only has another month left on immunosuppressants if everything goes as planned. They will monitor this in Oklahoma City. We are very excited and nervous.
Her pageant went well and she had a lot of fun! She was 2nd runner up, but she just shined on the stage. She did her own thing when modeling her evening gown and I can only imagine what her interview was like! She definitely had a strut going on during the party wear event.
Kaysa also did super. She nailed her song and she did fabulous in the party wear event! We were so proud of her. She won 1st runner up and most photogenic! Most of all she learned a lot and had a good time.
Kaysa has the end of her softball tournament this week and Kya will finish next Monday! I can't believe it is over. Where has the summer gone?
We survived the big 8 slumber party last week for Kaysa's birthday! It is hard to imagine she is 8. The girls all went swimming as soon as they got here. They were all going off the diving board and Kya sat back and watched for a while. The next thing I knew she was running and jumping off the diving board also! She had never done that before, but I was excited to see it! Kya hung in there with the big girls all evening. We finally made her go to bed at 1. She did not think that was fair, but it was for the best!
Thank you for the many prayers! We are so excited about her progress and her improvements. Please continue to pray as we taper her off the meds that she will not relapse into a flare! Thanks again for everything!
Kalee
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