I know it has been a while since I have posted anything, but our life has been busy!!! Since the last post we have tapered meds, started taking Kya to church, took her to a few basketball games, and ran around like crazy! And guess what! Kya is doing good.
We have been taking her to church on Sunday mornings and we have been getting her out a little more. Two weekends ago we even took her to the state basketball tournament with us. We sat away from the main crowds and used many GermX wipes! Her Uncle Lance had a team in the state tournament and our nephews Landon and Luke were in the state tournament. My other nephew, Tate, was in area playoffs and so was one of my close cousins, Taylor. So we went to many games in a short amount of time. Kya did really well at the games. She enjoyed the hotel and swimming the most. Kya was really surprised when we actually went and stayed in a hotel and didn't have to go see a doctor!
This last weekend we went to the state basketball tournament again. This time Kya decided to stay with Grandma Trish. She was sure she would have to go to the doctor this time and she could not be convinced otherwise. We watched our nephew, Tate, play and they won state for the 3rd year in a row! The Tulsa World named him MVP of the State Tournament!!! Congratulations Tate! We also watched Taylor's team play in state on Thursday night. Then, Friday we watched the Leedey and Vici teams play at the Ford Center before the Thunder game and then stayed to watch the Thunder play with a 104 to 102 win over the Nets!!! We saw 10 games in 3 days. Kya probably had more fun staying with Grandma Trisha and planting trees at the river place. She planted a red bud with very gentle kindness and care. She even patted it and kissed it to help it grow. (probably not real sanitary, but Grandma couldn't stop her in time!)
Kya has been really crabby the last couple of days, but I think the time change has thrown her schedule out of whack! I agree with her. I am kinda cranky also. Whoever decided that time should change just when you get into the swing of things is crazy!!!
Back to Kya's health. She is doing well. She seems to be strong, full of energy, rotten, full of energy, and did I say full of energy! She wears me out some days. She has been getting up with everyone else in the mornings and staying up later than everyone. She goes 100 miles an hour all day long. Her cheeks are a little pink. (not JM pink) I think that her natural color is just finally coming back since we have been tapering the cellcept. This is what I will continue to tell myself unless she shows any other symptoms. She continues to take her medicine and get stronger each day.
A side note: Bubbles has definitely been a wonderful source of therapy for Kya. Kya chases her and plays with her for probably at least 25% of her day! The dog is excited to go to bed at night! If Bubbles would get completely potty trained we would all love her as much as Kya. However, I will say that she was a great investment and has truly served her purpose!
I think that sums up our crazy few weeks since the last post. Please continue to pray for permanent healing and remission in Kya. We are having to make the decision whether or not to start her next year in private preschool. We both have mixed emotions and concerns, but know that we have to let her try to have some sort of normal life. Please pray for us and the decisions we have to make and the doctors who are directing us in those decisions. Thank you again for all of your wonderful prayers and support! Please keep them coming!'
Thanks,
Kalee
